Unrest follows the story of me and my husband, Omar. It's a story that's been flying under the radar for the last 30 years. This wasn't a disease I had ever really heard of, read about, or seen films made about, even though it is an extremely common condition. We were all grappling with a disease called ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome. As I began searching for answers, I fell down this rabbit hole and discovered a hidden world of thousands of patients all around the globe, many of whom had disappeared from their lives and used the internet to connect with each other and the outside world. At first, doctors couldn’t diagnose me and later began telling me that either there was nothing wrong with me or that it was in my head. When I was 28, I became ill after a high fever and, eventually, totally bedridden. It was also showcased at Sheffield Doc/Fest in the Immersive VR section of the Alternate Realities Exhibition, where it won the Alternate Realities VR Award. When you’re too sick to leave your bed, where do you go? Unrest VR premiered in the Virtual Arcade at the 2017 Tribeca Film Festival. An immersive journey into Jen’s experience of an invisible illness, myalgic encephalomyelitis, the project contrasts the painful solitary confinement of a bedroom world with the kinetic freedom of an inner dreamscape. Unrest VR, at This Way Up 217, is an interactive non-fiction experience inspired by Jennifer Brea’s feature documentary Unrest (Sundance 2017 Special Jury Award). How Jen and her new husband forge their relationship while dealing with her mysterious illness is at once heartbreaking, inspiring and funny.
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